Naomi was born in September 2005 with Cystic Fibrosis. She has had a battle for health ever since. Recently we discovered that a Compression Vest was available from the USA which would improve her quality of life but it would cost £20,000 in total. We began fundraising in March and managed to get her the vest in July 2008 and we send a huge THANKYOU to everyone who helped with the fundraising. However Naomi must continue to fight everyday, so we will continue to raise money for Cystic Fibrosis research and support groups. Find out more on Naomi's Page.
History of Naomi's Fight
Fundraising began on the 21st March 2008 with a pub crawl around Wigan town centre in Fancy Dress, the costumes were supplied by a local Fancy Dress Shop, and culminated in a Charity Concert on the 13th of July at the Liquid Rooms in Edinburgh with 4 bands playing through the evening. A number of different fundraising events took place in between and more details are available in the History Pages. We thank the press for backing our efforts with the Wigan Evening Post and Forth Radio being exceptionally helpful.
So why are we still here?
Although Naomi now has her vest, we have decided to continue to use her celebrity status to raise money for the Cystic Fibrosis Trust and other smaller Cystic Fibrosis charities. Hopefully we can help find a cure or improved treatments for the disease and help others to live with the consequences of life with CF. For details of the charities we are supporting have a look at the Charity Pages, and for more information on our upcoming events check out the Events Pages.
This site and all our efforts are entirely non-profit, run by Naomi's Grandmother with help from other family members from all sides of the family. The original idea was courtesy of Naomi's Aunt Zoe Morris and can still be accessed at www.naomisfight.co.uk. Naomi also has her own MySpace page, just follow the links, although it isn't updated often she would still like more friends.
Well what do you want me to do ?
There are lots of things you can do to raise funds for the CF Trust.
Buy something from our shop (all the profits are sent direct by cheque to the CF Trust).
Use Everyclick (link at bottom of the page) as your search engine and choose the CF Trust as your chosen charity.
Come to one of our concerts (keep an eye on the Events page).
Donate directly to the CF Trust (see their website - link on the left).
Organise your own fundraising event (let me know and I'll tell everyone to help you)
Are you artistic, design a T-Shirt/logo for our shop - as you can see I'm really not and could really use the help.
Buy a T-Shirt from Lorraine Barnes,
she has a new collection available here
Follow us on Twitter, add us on Facebook and MySpace, join our Facebook Group (remember to mention Naomi or CF so I know to add you, I get a lot of random requests)
Visit the Fox 19 News website for their video of Anna's story, the tale of an 8 year old girl who sadly lost her battle with CF
Join the Organ Donor Register, many CF sufferers eventually need lung and pancreas transplants. Post your pic on the Wall of Life.
