Who are we?
I am Laura, Naomi's step-gran (by the way my hair is black at the moment, will stick pics on facebook soon)
I carry a variation of the CF gene known as the scottish mutation P67L as it occurs in around 2% of the cases in Scotland.
My husband Marc, Naomi's Granddad. He carries the faulty CF gene that Sara and Naomi have
Daniel, Naomi's Uncle. He is completly clear of both CF genes
Katy, Naomi's Aunt. Katy has both the faulty gene from her dad and the scottish mutation from me. We do not know the full extent of how it affects her yet and will update the site as the results come in.
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What are we doing?
We are organising as many events as we can here in Edinburgh, where we all live now, with the support of our friends and collegues. Check out the Events Page for upcoming Events and History Page to find out what we have been doing so far.
Other Links
Here are some links to a variety of websites we feel deserve a mention
The Barnes Boys - Lorraine Barnes raises funds for the CF Trust with Calenders, wristbands, T-Shirts and Balls (that's the dancing kind).
mdjunction.com/cystic-fibrosis - A Cystic Fibrosis Support group based in America but available online to anyone.