Cystic Fibrosis Charities
What is Cystic Fibrosis?
Cystic Fibrosis (CF) is the UK's most common life-threatening inherited disease.
Cystic Fibrosis affects over 8,000 people in the UK.
Over two million people in the UK carry the faulty gene that causes Cystic Fibrosis - around 1 in 25 of the population.
If two carriers have a child, the baby has a 1 in 4 chance of having Cystic Fibrosis.
Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.
Each week, five babies are born with Cystic Fibrosis.
Each week, three young lives are lost to Cystic Fibrosis.
Average life expectancy is around 31 years, although improvements in treatments mean a baby born today could expect to live for longer.
Cystic Fibrosis Trust
The Cystic Fibrosis Trust is the UK's only national charity dedicated to all aspects of Cystic Fibrosis.
They provide information, Helplines, support and research as well as fundraising to raise awareness of the symptoms and improve diagnosis.
Please visit their website for more information.
You can raise money for the CF Trust every time you search the web by using the search engine below.
If you are planning to come to our concert and wish to buy tickets by credit/debit card in advance then use the widget in the bottom left corner, the money goes straight to the CF Trust using a secure server and then email me the names to put on the guest list.
Donations direct to the CF Trust can also be made through the everyclick website.
The Butterfly Trust
The Butterfly Trust offers advice, practical help and advocacy to people with Cystic Fibrosis and their families.
Based in Edinburgh, they provide information and advice on benefits, massage and support services including a befriending service for youngsters with CF.
Please visit their website for more information.
