Naomi's Fight

Naomi isn't the only person with CF in the world and certainly not the only one raising awareness. I have managed to put together some links to other websites and News reports about other families trying to find and fund a cure. Please have a look.

Fox 19 News have been campaigning on behalf of Anna and Kelly, they have some video footage that really should be viewed although it is distressing.
Anna's parents have set up their own website called Anna's Army and have also created a MySpace account for her. At the moment they are understandably dealing with grief and the website reflects this, but campaigning and fundraising will shortly begin again.

Allison John is the first person in Britain to have 4 transplants, she also has cystic fibrosis and has written this article for the Daily Mail. Her story is part of the new BBC series Lifegivers.

Lorraine Barnes and the Barnes Boys have their own website. Both Barnes Boys have CF, Lorraine has created and sold many items to raise funds for the CF Trust from T-Shirts to Calenders which can be bought through her website. She also organises many events each year from Sixty-Five Roses Balls to SkyDiving. She is on Facebook and always welcomes new friends (again mention CF so she knows why you want to be her friend).

The Boomer Esiason Foundation and Team Boomer raise funds in the USA via various methods including the NY Marathon and a very lucrative text message service. Boomer Esiason was an NFL quaterback, his son Gunner has CF. Boomer is also on Twitter and facebook.

CFResearch is a blog and twitter account that aims to keep the CF community pro-active with information about campaigns and research developments around the world.

mom2lil has her own CF blog. She is 29 and chronicles her battle and research in this blog, she is a chemist and hopes to educate, inform and comfort others with her story.

Understanding Cystic Fibrosis is a blog that has a huge amount of information linked into the site. Whilst the blog itself is not regularly updated the wealth of information makes it well worth a visit for everyone investigating CF.

mdjunction.com/cystic-fibrosis - A Cystic Fibrosis Support group based in America but available online to anyone.

Cystic Fibrosis in the Classroom. This is a PDF that gives a lot of information about CF designed for teachers to use as a school resource but equally helpful for parents and family members.

Cystic Fibrosis Research Institute website and information leaflet in PDF form. This PDF has a huge number of websites covering all aspects of CF, a very valuable and extensive resource.

Press Coverage

We have been very lucky to have received quite a lot of positive press coverage and support for Naomi's Fight so far. Naomi's local paper the Wigan Evening Post has been covering the whole campaign to pay for her vest. Links to most of the online versions of the papers articles are below. We also received Radio coverage advertising the Raffle night at the Black Rose Tavern from Forth Radio and Rock Radio, with Forth Radio also interviewing DJ Tommy in the week before the final concert in July.